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Facilitating Communication Between Your PCP and Your Neuro


Clear communication makes life more pleasant. In my marriage, parenting, and friendships I often say, “Please, talk to me.” How else can I know what is happening in loved ones’ lives, hearts and minds without open communication? But in order for this to happen, I need to be available, open and a good listener – and be able to “read between the lines.” It is also imperative I share my feelings, concerns and needs in order to have a two-way relationship. I have learned it is worth the effort.

Starting the dialogue

This same scenario should happen in our relationships with our doctors. We may need to start the open communication. With solid two-way conversations with our doctors, we learn from one another. Our attitude sets the tone, so I stay positive and realistic in my expectations.

Going to the doctor can be exhausting and affect clear thinking, so I do a couple things to ease my way. I take a copy of my medical history, which includes all my medications. This is particularly important so medical teams can monitor possible drug interactions. I also take a list of questions and new information, such as new symptoms, change in medications and what prescription refills I need.

Getting the most from your appointments

My doctors have peeked over my shoulder to read my notes. Using our time wisely shows respect. The guessing game of what has happened since our last appointment and what I need explained is settled, question by question. It is all on the table, so to speak. Obviously, I am a list person. I keep a list in my office, in my bedroom and by my reading chair. I write things down as I remember them. Even so, I encourage newly diagnosed people to keep some sort of journal to track symptoms and to keep a list of questions to research and ask their doctors.

I advocate for whole person care. To make this happen, I assist in the effort using tips I have gleaned from others, deciding which ideas work for me. I share with my doctors my daily routine, which includes healthy choices of medication, food, rest, exercise, recreation and relaxation, maintaining spiritual health and relationships with family and friends. I ask for advice in areas where I am weak. In this way, I am a partner in my health care with my physicians.

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Related Article: Feel Better Talking to Your Doctor
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Quick Tips
  •  

    Here’s a checklist to help get the conversation going:
     
    Physical symptoms: Tell your healthcare professionals about any leg spasms, tingling, or changes in sleep patterns you may be experiencing.
     
    Physical appearance: Talk about things like weight gain or loss, dry skin, enlarged moles, or ridges on fingernails.
     
    Personal matters: Discuss your stress level, exercise regimen, planned trips, and major upcoming events in your life.
     
    Expanded Disability Standard Scale: EDSS is a method of quantifying disability in MS. Ask where your doctors see you on the scale.
     
    Medications: Discuss any new medications you’re taking, and get new prescriptions or refills for any that have expired.

     

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