My Dream Team for Optimum Healthcare

Learning from therapists

A few years ago, my neurologist recommended physical therapy to undo some bad habits I had developed while trying to cope with spasticity. I had been using a cane in my right hand, since my right side is weaker. When the therapist suggested switching the cane to my left hand, my walking improved immediately. I also learned how to identify the weak spots in my legs and hips, and I discovered new exercises that increased my strength. Learning is a step-by-step process.

Getting to know the office staff

When dealing with your doctor, the office staff are the first and last people you see when you visit. So it’s wise to learn procedures for all aspects of appointments, such as ordering prescription refills and getting to know what the staff needs you to do at each appointment. Take time to watch them in action so you can learn the office dynamics. This knowledge will help you and the office staff work efficiently and productively together.

Keeping the dialogue current

In 1987, the Internet was nonexistent and very few books were available on MS. During those months that the doctor was watching my symptoms, I was in limbo, without a name for my odd physical symptoms. When he asked if I knew anything about MS, I had to admit that I didn’t. Afterwards, I went to the library and looked it up. Naturally, I found nothing.

The situation today is very different. And, although I warn people about information overload, information is power. We learn to sift through what applies to us and are better informed for future experiences.

Also, as you adapt to the changes in your body, new questions begin to arise. When I started experiencing leg spasms 15 years after my diagnosis, I was taken by surprise. I had never experienced spasticity or pain before and didn’t even know what it was called. All I knew was that my legs were like rubber bands that were unable to unfurl and relax. When I called my doctor, he explained what was happening and prescribed a muscle relaxant. Once I had a name for the symptom, I was able to research it on the Internet and find out about treatments and exercises that could relieve the stiffness.

Being the key player

Looking at the large picture of our lives, we spend most of our time without a doctor or nurse nearby. Therefore, during the remainder of the day, it’s up to us manage our care. So when building your dream team, it’s important to keep in mind that you are a key player. Taking an active role in your medical care keeps you at the center of all activities. Ask questions, answer questions fully, gather information, make suggestions, and listen to the suggestions of others and keep track of progress and setbacks. Life is full of surprises, and when one slaps us in the face, we need to know where to turn for guidance. If we have our team in place, we won’t face challenges alone.